tag:blogger.com,1999:blog-1842552060622647387.post1537904409860112730..comments2021-02-17T22:02:22.958-06:00Comments on Optimistic with MS: Happy Veteran's Day + BG-12 UpdateCSAhttp://www.blogger.com/profile/09255352402031602176noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1842552060622647387.post-6780772142654945612012-04-12T10:34:17.582-05:002012-04-12T10:34:17.582-05:00looking to speak with someone on BG12 extension st...looking to speak with someone on BG12 extension study to gain patient perspective and experience in the study. sorry to post on this site, don't mean to infringe on patient group privacy. if willing to discuss (and be compensated for interview time), please email: mspatientexperience@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-67915007129217222132011-12-14T18:09:41.965-06:002011-12-14T18:09:41.965-06:00THANK YOU AND MERRY CHRISTMAS.THANK YOU AND MERRY CHRISTMAS.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-82827025011797857142011-12-11T19:49:22.360-06:002011-12-11T19:49:22.360-06:00We cannot know that at this point. They have to co...We cannot know that at this point. They have to complete clinical trials and the drug would then need to be approved by the FDA. They may have a projected timeline, but it will depend. I will try to find out more.CSAhttps://www.blogger.com/profile/09255352402031602176noreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-4778289456844406832011-12-08T18:37:08.097-06:002011-12-08T18:37:08.097-06:00When is this drug planned to be marketed and offer...When is this drug planned to be marketed and offered as a treatment option for patients?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-49878565290434768932011-11-18T15:35:50.312-06:002011-11-18T15:35:50.312-06:00I'm on this ... extended study. it has neuro p...I'm on this ... extended study. it has neuro protective qualities, minimal side effectsm no malignancies, no relapses for wellover 2 years and let me tell you...I am better than I have been for a very long time!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-42304353400447871982011-11-13T19:26:05.278-06:002011-11-13T19:26:05.278-06:00The following excerpt from a Reuters article ( htt...The following excerpt from a Reuters article ( http://mobile.reuters.com/article/idUSTRE79P2WI20111026?irpc=932) will hopefully clear up some confusion: "The CONFIRM study, unlike DEFINE, also tested BG-12 against Copaxone, a drug made by Teva Pharmaceutical Industries Ltd. Copaxone cut the annualized relapse rate by 29 percent.<br /><br />Biogen said BG-12 cut the rate of disability progression by 21 percent when given twice a day and by 24 percent given three times a day. That result was not statistically significant and compares negatively with the DEFINE trial, which showed a cut in the rate of disability progression of 38 percent.<br /><br />Biogen said the lack of statistical significance may be attributable to an unexpectedly low rate of disease progression in the placebo group. It said it is studying the data closely to better understand the figures.<br /><br />Copaxone cut the rate of disability progression by 7 percent."<br /><br />Thanks for the questions and thanks for reading!CSAhttps://www.blogger.com/profile/09255352402031602176noreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-47886604749347127902011-11-13T08:53:28.820-06:002011-11-13T08:53:28.820-06:00That was my question, also. If it doesn't red...That was my question, also. If it doesn't reduce disability progression, then is it really a better treatment? What is it's purpose, other than fewer relapses, if it doesn't limit the progress of the disability? Just a question. I appreciate all of your research - I am just so impatient for an authentic answer to this disease. Keep up the good work. You are providing a great service.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1842552060622647387.post-73048126662093186242011-11-12T17:41:31.566-06:002011-11-12T17:41:31.566-06:00Question: Does BG-12 protect the myelin in any way...Question: Does BG-12 protect the myelin in any way or does the disease progress as if the medication wasn't being given? I realize this medication decreases relapses but I wonder if it protects the covering of the nerve pathway. Do you or anyone else know the answer to this?<br />BethAnonymousnoreply@blogger.com