I intend this blog to be a mixture of my personal experiences with Multiple Sclerosis (MS) and news related to MS. Hopefully, I can shed an optimistic light on MS even though it is difficult to be an optimist living with MS.

Tuesday, July 19, 2011

A Little Bit of Everything

Check out the NMSS blog

Then, read about the latest on Jabecca Walk  (See also Getting Involved and an MS Competition)

And now, an update on me; I know I don't talk about myself very often on here but it is mostly because I haven't really had anything MS-related to report.  I have been doing very well lately, which has been great!  The weather in the Midwest has been consistently in the triple digits, so I keep waiting for the heat to affect me as it did last summer.  So far, however, the heat has not bothered me!  Part of that may be because I am not going out into the heat quite as much since I know it could become an issue and I am careful not to "overdo" things when I do go out into the heat for longer periods of time.  Despite my conscious efforts, I still believe that something is working for me (Copaxone, vitamins, or a combination of everything) and I am very excited about that.  Except for taking my shot everyday and the bracelets on my arm that remind me, I really haven't noticed that I even have MS lately.  THAT is a great thing!  I am hoping that this keeps up, but am continually waiting for the floor to drop out beneath me.  I will keep you posted, but know that if I am not posting about my "condition," it is because I am doing well!

In research news, the latest MSIF mailer I received reported that a recent study "examined the relationship between self-reported relapses and levels of sports activity in 632 patients with MS. The study showed no association between sports activity and clinical relapses."

 MSAA has produced a new publication, Solutions for Wellness.  It can be viewed by clicking here.

 That is all I have for today; stay well!


8 comments:

  1. That is great news:-)
    I'm happy your doing so well, it's always nice to hear good news. Yes it's been a bit too hot, with the air so thick it would be easier to drink then to breath it.

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  2. The great news is wonderful. Embrace feeling good and let the fear go as best as you can. Way to take care of yourself by avoiding the heat!

    http://www.facebook.com/ThrivingWithMS

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  3. Thank you for your positive comments!

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  4. Your bracelets remind you to do your shot? How innovative!
    I will toast your continued health.

    Nicole

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  5. Hello. My son in law, who is now 28 has recently been "probably" diagnosed with MS. The MRI done in Germany showed active and inactive lesions. He is headed back to the US this evening and will be seeing a neurologist. I, of course, am worried about the future. By reading your blog, at least I have hope for a cure. I feel like that by all the research, they will find a cure. My e-mail is: Bethtrn@yahoo.com. I look forward to hearing from you. Thank you. God bless.

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  6. Hi my name is Jess, I a new to blogging and am also trying it out as a way to express my struggles with MS. I am 23 and was diagnosed at 16, 7 years later and I am still learning to cope.
    Please check out my blog =) nice to be able to relate to someone!

    -Jess

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  7. Beth, I am very sorry to hear about your son-in-law's probable diagnosis. I cannot imagine how difficult it is for a mother to hear the news. I know my diagnosis was much harder on my mother than it was on me. I am glad that you found my blog and that it could provide a sliver of hope. I truly believe that if there is ever a good time to be diagnosed with ms, this is it. The number and quality of studies are very encouraging. Thanks for your comment; I hope you continue to have hope and an optimistic outlook. -CSA

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  8. Jess, thanks for stopping by my blog and thanks for sharing how ms affects you. I look forward to reading your blog! -CSA

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